Today’s Gratitude – The little moments

November 5, 2013

Often the best things in life happen in the everyday moments. My favorite of yesterday was my daughter, Lindsey, laying at my feet by the kitchen table talking about how nice it is to lay on the floor.  About five minutes later I decided to join her and we cuddled underneath our kitchen table for a while.  It reminded me of something we would do as children, the simplicity of life in hiding.  We tried to recruit my other daughter, who decided this was a little too much.

I find that a lot of the best times in life, are taking the time to capture a moment.  Fortunately this is something that can work with whatever challenges we have in life.  I find that having fibromyalgia has made me more aware of my surroundings as I am moving at a slower pace.  There is more time for the cuddles, the conversations, and to watch for clues that something might be off-balance.

May we take the time to grasp the moments.

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Step 1 unmanagability and powerlessness

November 4, 2013

Having chronic pain is something I am powerless over and can’t always manage.  I have good days and bad days.  The good days make me feel like I am able to function well, I feel healthy, and empowered to accomplish my goals and build relationships with people around me.  On my not so good days, I see the pain and fatigue show up in my life limiting me from doing what I want, but still able to function overall.  On the really bad days, I feel depressed, get tired of crashing, and seek the quick and often unhealthy escapes.

Powerlessness is what happens physically to my body.  Fibromyalgia has a path of its own that I don’t always understand.  Certain activities and situations can draw me into an overwhelming sense of fatigue and pain that at times can catch me off guard.  Though I can limit this pain to some degree by watching my stress, exercising, being healthy, managing activities, it will always be there ready to be activated.  Sickness and unintended stress can sometimes seem to come from no where, causing me to become more aware of this thing inside my body.

Unmanagability is what happens in my life because of my chronic pain.  When my fibromyalgia is in full force my life can revolve around my pain and fatigue and often other areas get neglected.  The more I try to control it,it can just make it worse as too much activity just wears me down.  When things feel totally out of control, I seek to escape this feeling and don’t always have the capacity to make good choices.  I get really tired and can’t  think straight, and don’t always care anymore to make the needed effort.

As depressing as this all sounds to me, seeing the reality allows me to look for a new solution.  I can be aware of what is beyond my own ability, and surrender this to God, a spiritual power, to the earth, to friends, or something that brings a sense of release.  Then I look at what I can do to keep my fibromyalgia in check as best as I can, and prepare for those days where life seems to sweep me under.  Often for me this is finding my support network, reaching within myself and seeking something spiritual.  If something isn’t working, seeking the truth of it, allows me to search for something better.  May today, I focus on what brings me peace and health, and prepare myself for the darker days with grace, wisdom and compassion.


Accepting my imperfect body

November 4, 2013

It is difficult for me at times to accept my body for its imperfections.  From a young age, I have struggled with focusing on whatever wasn’t right with my body.  This could be weight, being too tall, not being good at a particular sport, or having a bad hair day.  Our society is very focused on the physical, and a perfect physical body often appears to be a perfect person.

Each day my body seems to fail me, I have to find a sense of compassion and grace.  What I had hoped for, is not always what reality is.  My body can hurt in situations it shouldn’t hurt, can wear out before I want it to, can limit my activities because I am too tired, or lead me to do things I would rather not do.  I can’t always control what comes my way, and this powerlessness can result in frustration.  If I can find a way to bring some acceptance and love to the less than, I will have more compassion for myself and be able to integrate all that my body is.  When I bring love to myself, this also flows out to others around me.  I become less judgmental, able to focus on the more important things in life.

Today, I will try to be more aware of when I put shame upon myself.  I will strive for serenity, accepting the things I cannot change, and making changes in the areas I can.


A new Day

July 29, 2013

A day of disappointment, yet a day of gratitude.  Another loss in this chapter called life.  My new job seemed to have been going well.  I enjoyed the work, and felt like it was an area I could excel in.  I found my energy level could maintain itself as long as there wasn’t too much stress.  Unfortunately, my coworker who was training me, wasn’t happy with my performance, and when she isn’t happy, then she prevails.  As a result I was let go.

I have found that I have one major gauge when it comes to conflict – is the person willing to communicate and work through the conflict?  Through the years I have met many people, some who were highly moral and some who appeared to be more self protective.  Regardless of their moral outlook, the biggest area where conflict could be resolved was a willingness to be humble and talk through the issues.  Unfortunately this wasn’t the case with my coworker.  As much as I wish to rant and rave, in the end it doesn’t really matter.  I will strive to communicate, and be open-minded.  However I can’t control other people and don’t tolerate regular insults well.

The upswing – I enjoyed my little time reentering the working world.  I love learning new things, love learning about the law, and enjoyed being an advocate for those who are going down the wrong path.  I took pleasure in giving grace to people even when they had made serious mistakes or were caught in the system.  I could be kind and hopefully make their day a little easier by treating them with dignity.  I learned more about my strengths and weaknesses, in spite of literally no positive feedback.  I created my own systems, made changes with my mistakes, worked well with clients, gave it my best effort and tried to be positive.  I didn’t do as well without structure, in some of the details, and with unclear roles and situations.

It is hard not to feel like a failure when things don’t work out.  To some degree I have a clear understanding of my own role, and can protect my own hurt with feelings of anger.  I asked enough questions to seek better clarity, but the more that was spoken, the less that made sense.  I am grateful that I didn’t disclose about my fibromyalgia, as this would have made it even more complicated.  I don’t have to question whether they were using it against me, though she could have known through her LinkedIn search.  The reality is part of it was my doing, part of it is who I am, part of it was the environment, and a great part of it was the people.  I can gain comfort in knowing I tried my best, and sometimes things just don’t work.  May grace be given to me.

The beauty of the struggle is that this is when I like to write.  I have much less to say in the good times – which there has been many.  Somehow I feel more in touch with my soul in the pain than the mundane.  So as much as I prefer to have the glory, perhaps it was all meant to be…..

I


Health updates and daily life with chronic pain

May 3, 2013

I have been doing a lot of writing today.  It is feeling therapeutic as I take some time to reflect and surrender.  I have been battling several colds and injuries that have kept me less mobile, so writing is a better use of my time then all the computer games I have been playing.

I have written over the past 6 months in my blog about various changes I have made to my life to improve my health.  I have been more careful about my food about 70% of the time.  This means that I aim to eat really healthy most of the time, but still have my treats.  I have been eating various foods from the Medifast program, as well as taking the Raw Meal Powder to make shakes for my morning meals.  I find that a Raw Meal Shake is a great way to start the day (adding fruit and yogurt), and the Medifast desserts are a great way to end my day.  In the morning, I have about 5 cups by my computer – 2 shakes (can’t ever make it small enough), water, coffee, and sometimes airborne and/or tea.  Let’s say, I clear the system early with all the trips to the bathroom. In the afternoon/evening I tend to go for some protein (fish, veggie burgers, occasional red meat/chicken).  I use cottage cheese and salsa on a lot of things.  Those veggies are still hard to get in – need to add some to my shakes.  I feel better with a lower fat diet and with a moderate amount of carbs.  I would probably do even better if I could avoid the chips I had today.  I am brainstorming on how to pack my weird foods to work next week.  Maybe if I bring the salad, I will be forced to eat my veggies.

Exercise has slowed recently because of illness and injury.  I joined a soccer team to work on my personal soccer skills, but have missed a few weeks.  I also play racquetball, but this may not work anymore with my work schedule and other issues that have come up.  I love this type of activity because I feel more like playing than working out.  I enjoy the P90X weight routines, because they start out simple and progress.  When I am sick, I can go to an easier plan.  When I am able to keep a regular routine I can add time and intensity.

My pain has felt much better lately.  I had some work done on my back that has helped tremendously in working through the knots and tension.  Though I still ache, much of the time it is mild.  Once or twice a week the pain will affect my sleep.  The other times my sleep is effected is usually my own stress, or the cats sleeping at my feet.

I have been struggling more with the emotional and mental challenges.  I can’t always cope well with the stress around me, and can find myself discouraged and slightly depressed when I am sick for days on end.  I am doing more reading and have rejoined a support type of group which will be helpful.  I will however lose some of my other support when I return to work.  In many ways, I believe work will give me some time not to over focus on things, at the same time it could wear me down.  Keeping myself spiritually and value focused will be important so I don’t self defeat.

I am enjoying the warmer weather and more time outdoors.  Oregon is beautiful this time of year, and energizes me.  We have a few weeks of down time before my commitments pick up, so hopefully grace will follow me into the busy time of the year.

Blessings.  ET


The Next Adventure – I got the job!

April 29, 2013

I can’t believe it – I am almost officially employed.  I received a call a few days ago that I was selected for a part-time job as a legal assistant.  I am looking forward to returning to work, challenging my mind, and meeting new people.  Everything seems like a good fit for me during this time in my life.

Having chronic pain does bring some unique concerns that I would prefer not to have.  I have to consider the office environment, my ability to focus, and whether I should disclose about potential limitations, and ways I may need to adapt.  Unfortunately every job is different, so what worked and didn’t work in my last job may not apply.  Fortunately I am healthier than I have been for years, and am no longer on any medication.  This should make a difference in my stamina.  Hopefully eating right, taking breaks, and drinking some good coffee will help me in the initial intense learning days.

Regardless of my concerns, I can’t help but be excited.  I will hold on to the energy I feel from being with the people I will be working with, and my own interest in the law.  I love learning about the law, and doing research on topics that interest me.  I will keep my support group strong, let go of some of my commitments and forge ahead to this new path.  May the spirit guide me in each step, and help me deal with whatever comes my way.

 


job interview today

April 22, 2013

I had a job interview today for a legal assistant position.  In many ways it was a spur of the moment application, looking through jobs and finding one that seemed interesting.  I have always wanted to be a legal assistant, and this looked like a great fit for me: close by, few areas, and my areas of interest and strengths.  I really enjoyed meeting the attorney and other legal assistant – wow, great people.

When I came home, I wanted the job more.  I love the idea of a new challenge and being able to make some extra money.  Did I mention the people were great?  Very kind and easy to be with.  The job sounds challenging and stimulating.  The interview went well – it lasted a few hours.  I really believe I can do the job (well most of the time).

Then the fear creeps in – should I have disclosed about my chronic pain?  Last time disclosure was a disaster, and ended up being more problematic.  I think it is something better to manage on my own.  Lots of coffee in the early days to help with the fatigue, and move around as needed.  I may have to limit my evening activities.  I felt confident in my decision not to share.

As the evening approaches, I decide to see if they looked me up on Facebook or LinkedIn.  Not sure about facebook, but linkedin shows that someone from a law firm looked at my profile today – oh no, what is on there?  Overall professional, with lots of connection to disability groups and pain groups.  Then I saw the part about fibromyalgia – did they read this?  Oh shit, not what I wanted.  I didn’t want the interview process to be mixed up with the fibromyalgia.  Looks like they may have known before they interviewed me.  The good part is, we still talked for hours.  The challenge is whether they were hoping I would disclose or not.  Since no-one read my chronicpain journals today, I am confident they didn’t read about my disclosure series :).

Well I should know in a few days whether I got the job.  I am feeling sad and fearful.  Sad that I have to worry about this thing called fibromyalgia and fearful that it will be a shadow that follows me every time I step into the light.  I am one of 5 people who were interviewed, and clearly we connected.  I pray that regardless of what they learned, they can be open to seeing my strengths and find who is the best one for the job, whether that is me, or another person they interviewed.  I also pray that I can accept whatever comes my way.  I don’t feel compelled to take the fibromyalgia off of my linked at this point, but might be something I do in the future if I continue to look for work.


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