Step 1 – what I can’t control about having chronic pain and fibromyalgia

A big part of step one is understanding what we can’t control, looking at our thoughts, and the losses caused by our pain.  I have created several lists that reflect on these questions.  I find that looking directly into my pain, is often the best way for me to learn to live with my losses and find hope.

There are many things I can not control about having chronic pain and fibromyalgia.  Below is my list of things I can’t completely control.  Some of these may not be directly related to chronic pain, but can impact it regardless.

  • Pain level – having pain spasms, sensitivity to touch, back pain, trigger points, myofascial pain, tingling pain
  • Fatigue level – being tired, lack of energy, not able to focus
  • Medical world – doctors, nurses, pharmacist, lab technicians, finding a cure, medication impact
  • Weather – rain, heat, humidity
  • Relationships – what others think, what others feel, how they respond to me
  • Initial thoughts and emotional triggers – overreacting, taking things personally, losses

Consequences/impact of having chronic pain and fibromyalgia.

  • Loss of number of relationships I can keep up with
  • Loss of time being physically productive
  • Loss of career options, money
  • Additional stress, harm to body because of medications
  • Intensified other problems, more difficult to manage
  • Conflict with other people who didn’t believe I had pain, or thought I caused it
  • Initially didn’t have coping skills to deal with it
  • More time in escaping behaviors
  • Loss of self-esteem and sense of value in our culture
  • Could be more self-centered in dealing with pain
  • Less stable, less predictable, harder to plan
  • Difficulty keeping up with house, young children, and responsibilities
  • More needy of others
  • Trust in prayer, impacted view of God

Destructive thoughts

  • I am not worthy
  • I caused my pain
  • People don’t care
  • God is punishing me
  • People are better without me
  • Expecting things from others they can’t or won’t give
  • There is no hope
  • I am alone
  • No one understands
  • I can’t live like this
  • I need a cure, I need an answer
  • I need to escape
  • I will do anything to get rid of my pain
  • There is no hope

Fortunately this is just the beginning.  Though it is painful to create these list, I hope it will help others recognize the struggles and losses of dealing with chronic pain.  The chronic pain may always be a part of me, but it doesn’t have to always create the destructive thoughts I have added to this list.  Though not a part of step 1 I will end with a more hopeful list.

Positive thoughts of having chronic pain

  • I can make it
  • I am valuable
  • I am stronger
  • My relationships are deeper
  • I have more compassion
  • I am kinder, more vulnerable
  • I prioritize my time better
  • I can say no when I need to
  • I have much to give to others
  • I am loved and can find the resources I need
  • I am not alone, there are many people who struggle too
  • My higher power cares and is here for me
  • I can still do what is important even if it looks different
  • I can find a new career path
Advertisements

3 Responses to Step 1 – what I can’t control about having chronic pain and fibromyalgia

  1. How beautiful to find the gifts amidst suffering. May you be healed and made whole, blessed richly and filled with peace.

  2. Gospel Restoration says:

    Thank you for sharing these lists. I really appreciate reading these because I’ve thought/felt/experienced much of this.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: